Screening for Dementia in Persons with Intellectual Disability

People with an intellectual disability have unique needs when it comes to screening and assessments for Alzheimer’s dementia and other related dementias. As people with intellectual disabilities (ID) live longer, some are at higher risk for dementia, particularly those with Down syndrome. Screening for dementia in people with an intellectual disability can help ensure they have equal access to quality evaluations and follow-up care.

We developed and implemented five training sessions for professionals throughout the state who are working with people with an intellectual disability to improve their understanding and utilization of the National Task Group-Early Detection Screen for Dementia (NTG-EDSD) tool. The NTG-EDSD was developed to identify subtle changes in behaviors and functioning associated with dementia in individuals with intellectual and developmental disabilities.

Trainings were primarily provided to professionals working in the Managed Care Organizations (CareWI, Inclusa, My Choice, and Community Care) in Wisconsin’s 72 counties, adult family home providers, and other organizations that serve people with ID. Training topics included:

  • Assessment of Dementia in Persons with an Intellectual Disability
  • Addressing Behavioral Symptoms in People with an Intellectual Disability and Dementia
  • How to Use the NTG-EDSD Tool and Testimonials
  • Implementing Screening for Dementia to Enhance Service Delivery

Access Dementia Capable WI NTG Materials

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NTG Training 2019
Members of the NTG (National Task Group- Early Detection Screen for Dementia) training in Brookfield, WI, April 2019. Pictured: Molly Schroeder, Tammi Albrecht, and training presenters Dr. Art Walaszek, Dr. Greg Prichett, Jody Krainer, and Mickell Wilcenski