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Additional Resources

A tremendous amount of information can be found about Alzheimer's disease and related dementias on the Internet. There are sites written by caregivers to help other caregivers. There are sites that provide information about the disease and other sites focused solely on research. We encourage you to learn all you can and the web is an excellent resource, but when visiting a website please be aware of who produced it. Is it the opinion of one caregiver or one doctor? Is it from a reputable organization such as the National Institutes on Health or the Alzheimer's Association?


The following is a list of credible web sites and resources from respected sources. Each may have links to other sites so you can expand this list to meet your interests. We hope this list is helpful as you surf the web for information on Alzheimer's disease.

 

Topics:

Alzheimer's Disease | Mild Cognitive Impairment | Vascular Dementia | Lewy Body Disease

Frontal Temporal Disease | Primary Progressive Aphasia | Parkinson's Disease | General Information | Research

 

 

Alzheimer's Disease

Alzheimer's & Dementia Alliance of Wisconsin
www.alzwisc.org

 

Alzheimer's Association
www.alz.org

Alzheimer's Association, South Eastern Wisconsin Chapter
www.alz.org/sewi/

 

Alzheimer's Association, Greater Wisconsin Chapter
www.alz.org/gwwi/

 

Alzheimers.gov

the government's free information resource about Alzheimer's disease and related dementias. Here you can find links to authoritative, up-to-date information from agencies and organizations with expertise in these areas.

Alzheimers.gov

 

Alzheimer's Support Center

www.alzheimerssupportcenter.org

 

Alzheimer's Foundation of America
www.alzfdn.org

Alzheimer's Disease Education and Referral Center (ADEAR)
www.alzheimers.nia.nih.gov
Use this site to find current, comprehensive Alzheimer's disease information and resources from the U.S. Government's National Institute on Aging (NIA).

 

Alzheimer's.net

Alzheimers.net

Alzheimers.net is both a resource for people suffering from Alzheimer's as well as offering support to caregivers. The website offers a wide assortment of information related to Alzheimer's including forums, blogs and preventative care.

 

National Institutes on Health
www.nia.nih.gov/Alzheimers/AlzheimersInformation/GeneralInfo/

 

The Alzheimer's Project

www.hbo.com/alzheimer's

A 4-part documentary and multi-media public health series about Alzheimer's research and care, co-presented by HBO and the National Institute on Aging . The documentaries, along with 15 additional short films and many other resources, are available to view free.

 

A Quick Look at Alzheimer's Disease

www.aboutalz.org

Four videos written and directed by David Shenk, developed in partnership with Alliance for Aging Research and funded by a grant from Metlife Foundation.

 

Mild Cognitive Impairment

National Institutes on Health
www.nia.nih.gov/Alzheimers/AlzheimersInformation/GeneralInfo/

 

Mayo Clinic
www.mayoclinic.com/health/mild-cognitive-impairment/DS00553

 

Vascular Dementia

Alzheimer's Association
www.alz.org/alzheimers_disease_vascular_dementia

 

Mayo Clinic
www.mayoclinic.com/health/vascular-dementia/DS00934

 

National Institutes on Health
www.ninds.nih.gov/disorders/multi_infarct_dementia

 

Lewy Body Disease

Lewy Body Disease Association
www.lbda.org

 

Mayo Clinic
www.mayoclinic.org/lewy-body-dementia/

 

National Institutes on Health
www.ninds.nih.gov/disorders/dementiawithlewybodies/dementiawithlewybodies.htm

 

Frontal Temporal Disease

Memory & Aging Center (UCSF)
memory.ucsf.edu

 

The Association for Frontotemporal Dementias
www.ftd-picks.org

 

National Institutes on Health
www.ninds.nih.gov/disorders/picks/picks.htm

 

Primary Progressive Aphasia

Primary Progressive Aphasia Program (Northwestern University)
www.brain.northwestern.edu/ppa/ppa.html

 

Parkinson's Disease

National Parkinson's Foundation
www.parkinson.org

Regional Parkinson's Center
www.aurorahealthcare.org/services/regional-parkinson-center/research-institute.asp

 

National Institutes on Health
www.nlm.nih.gov/medlineplus/parkinsonsdisease.html

 

General Information

Senior Resources (Wisconsin)
www.seniorresourcesonline.com

The purpose of this website is to provide the most accurate and comprehensive online information on services available to older adults in the state of Wisconsin

 

Wisconsin Department of Health Services
dhs.wisconsin.gov/aging/index.htm
From this page you can access a variety of information on programs and services in Wisconsin for older people and caregivers. A brief description of each service is available.

 

Wisconsin Board on Aging and Long Term Care
longtermcare.state.wi.us
The mission of the Board on Aging and Long Term Care is to advocate for the interests of the state's aging and disabled populations, to inform consumers of their rights and to educate the public at large about health care systems and long term care.

 

Wisconsin Family Caregiver Support Program
www.wisconsincaregiver.org
This program assists local and long-distance family members and friends, who care for persons age 60 and over; or individuals with Alzheimer's disease and related disorders regardless of age to connect with local information and resources such as respite care, support groups, caregiver education, home delivered meals, transportation, adult day services, homemaking, personal care, home health care, financial and legal help, telephone support, living options and case management.

 

Benjamin B. Green-Field Library & Resource Center
www.alz.org/us/rtlibr.htm
The Alzheimer's Association's Benjamin B. Green-Field Library & Resource Center collects a wide range of materials related to Alzheimer's disease and related disorders and provides services to family members, educators and students, health professionals, social service agencies and the general public.

 

Wisconsin Adult Day Care Association
www.wadsa.org

Information about how to choose an adult day center and how to locate one in your community

 

Dana Brain Web
www.dana.org
General information about the brain and current brain research, as well as links to validated sites related to more than 25 brain disorders

American Association of Retired Persons
www.aarp.org
AARP serves persons age 50 and older through information and education, advocacy, and community services which are provided by a network of local chapters and experienced volunteers throughout the country.

 

The Hartford: Alzheimer's, Dementia and Driving
thehartford.com/alzheimers/
This guide can help people with dementia and their families prolong independence while encouraging safe driving. It provides suggestions for monitoring, limiting, and stopping driving. The information incorporates the experiences of family caregivers and people with dementia, as well as suggestions from experts in medicine, gerontology and transportation.

 

Eldercare Locator
www.eldercare.gov

800-677-1116 (toll-free). Eldercare Locator is a nationwide directory-assistance service helping older people and their caregivers locate local support and resources. It is funded by the U.S. Administration on Aging (AoA). AoA's website at www.aoa.gov offers information about caregiving, working with and providing services to people with Alzheimer's disease, and where to look for support and assistance.

 

Family Caregiver Alliance
www.caregiver.org
800-445-8106 (toll-free). Provides information, education, services, research and advocacy to support and sustain the important work of caregivers, nationwide, caring for loved ones with chronic, disabling health conditions.

National Institute on Aging Information Center
www.nia.nih.gov or www.nia.nih.gov/Espanol

800-222-2225 (toll-free) or 800-222-4225 (TTY/toll-free). The NIA Information Center offers a variety of information about health and aging.

 

National Family Caregivers Association
www.thefamilycaregiver.org

800-896-3650 (toll-free). The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

 

Assisted Living Facilities

www.assistedlivingfacilities.org

AssistedLivingFacilities.org lists information on over 36,000 state-licensed assisted living facilities and explains the rules and regulations of each state.

 

Senior Living Map

www.seniorlivingmap.org

Search by city and state featuring an interactive map.

 

Research

The Wisconsin Alzheimer's Disease Research Center
adrc.wisc.edu
Collaborative team of investigators at the UW examining potential treatments and prevention methods for Alzheimer's disease and other types of memory problems such as Mild Cognitive Impairment.

 

Alzheimer's Disease Research Centers
www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers

 

National Institutes on Health
www.nih.gov

 

National Institutes on Health Clinical trials
www.clinicaltrials.gov

 

National Institute on Neurological Disorders and Stroke

www.ninds.nih.gov

 

Alzheimer Research Forum
www.alzforum.org
A scientific knowledge base on Alzheimer disease, with research news, expert commentaries, and databases for peer-reviewed articles, drugs, research reagents, grants, jobs, conferences, and more.

 

Center for Urban Population Health
www.cuph.org
A partnership of the University of Wisconsin School of Medicine and Public Health (UWSMPH), Aurora Health Care (AHC), and the University of Wisconsin-Milwaukee College of Health Sciences (UWM CHS). Its mission is to conduct and facilitate original population health research and educational initiatives that improve the health of urban communities through collaboration with academic and community organizations.

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