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ABOUT WRAP:

 

FOR WRAP PARTICIPANTS:

 

FOR RESEARCHERS:

 

SITE CONTACTS:

  • MADISON: Shawn Bolin
    sbolin@wisc.edu
    Phone: 608-263-2854
    Toll-free: 1-800-417-4169

  • LA CROSSE: Carolyn Flock
    flock.carolyn@mayo.edu
    Phone: 608-392-7187
    Toll-free: 1-800-362-5454, ext. 27187

  • MILWAUKEE: Celena Ramsey
    cmramsey@wisc.edu
    Phone: 414-219-7911

WRAP: Frequently Asked Questions

The answers provided below may help to answer any questions you have about participating in WRAP. For further information, please contact us at the site nearest you (listed at the bottum of this page).

 

Please note: WRAP is currently only recruiting individuals of minority backgrounds and those who already have a parent or blood relative who is a WRAP participant.

 

How will I benefit from volunteering for WRAP?

The main benefit from participating is knowing that you are contributing to a better understanding of Alzheimer's disease. Although WRAP is not directly looking for a cure for Alzheimer's disease, it is very important to learn how health and lifestyle factors might protect against developing this disease, and WRAP is helping to address that question.

 

Why is it important for people from different ethnic backgrounds to volunteer for WRAP?

Alzheimer's disease affects people from many different ethnic groups and parts of the world. In the United States, rates of Alzheimer's disease are sometimes found to be higher among persons of African-American or Hispanic heritage than for non-Hispanic whites. We do not know why that is the case. Higher rates of cardiovascular diseases among minority groups, or lower levels of education, may contribute to higher rates of Alzheimer's disease. The only way to discover if there are unique risk and protective factors for people with different ethnic backgrounds is for volunteers to become involved in research such as WRAP.


While it is not clear why these groups are adversely affected, scientists have learned that there are direct correlations between cardiovascular diseases and Alzheimer's disease. Statistically, African-Americans have higher rates of diabetes, heart disease and high cholesterol which can contribute to heart disease and the risk of Alzheimer's disease if not properly managed.

 

There has been significantly less research conducted with minority volunteers. If researchers are going to find an answer to why Alzheimer's disease is more prevalent in minorities, minorities must be willing to participate in research like WRAP.

 

Will I receive any payment or other compensation for participating?

There is a $50 payment for participating at each study visit.

 

Will my name or information I provide be shared with other people?

Information that you provide for the study is confidential and will only be shared with researchers involved in WRAP. Your name and any other information that might identify you personally will not be used in publications or study reports. WRAP procedures are reviewed and approved by the Health Sciences Institutional Board of the University of Wisconsin and the other medical centers involved in this research.

 

What if I need help getting to study visits?

The study may be able to cover the costs of cab fare or other transportation for participants who live close to study sites but have no way to get there.

 

How long does each study visit take?

The first visit takes about 6-7 hours, the second visit (four years later) takes 4 to 5 hours, and additional visits are likely to take 4 to 5 hours.

 

What kinds of questions are asked about my history?

You will be asked to provide information about your family history of dementia, educational and work background, medical history and current medications, diet and exercise, daily activities, social stresses and social networks. Each of these factors may be important in understanding healthy cognitive aging and the development of Alzheimer's disease.

 

What is cognitive testing and why do you do it?

Cognitive testing provides a picture of each person's memory and thinking skills. By comparing a person's "cognitive snapshots" across time, we will be able to learn about health and lifestyle factors that promote strong memory, and about factors that may lead to memory problems and Alzheimer's disease. Examples of the cognitive tasks you would be asked to do include memorizing words, numbers, and pictures, solving visual puzzles, and naming words as fast as you can.

 

Who do I contact for more information about participating in WRAP?

 

Madison site:

Shawn Bolin, sbolin@wisc.edu, 1-800-417-4169 or 608-263-2854

 

La Crosse site:

Carolyn Flock, flock.carolyn@mayo.edu, 1-800-362-5454, ext. 27187 or locally 608-392-7187

 

Milwaukee site:

Celena Ramsey,cmramsey@wisc.edu, 414-219-7911


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